About 2023 Rare Disease Day

The Neuromuscular Disease Foundation (NDF) celebrates Rare Disease Day with its mission to improve treatment and opportunity for the 300 million people worldwide living with a rare disease. Through Rare Disease Day, NDF joins forces with over 100 countries and regions around the globe to enhance the quality of lives of people living with GNE Myopathy and over 6000 other rare diseases.

Everything NDF does is possible thanks to people like you who believe in supporting GNEM patients worldwide by contributing to our scientific research, and patient programming, including our patient health clinics, emotional wellness support, and caregiver support.

We are the largest GNE Myopathy organization because of you!

Your donation matters!